How to Request Information

Main Content

The extensive clinical information in CIBMTR's Research Database is available upon request to anyone in the United States or worldwide.

Before requesting information, please visit the Resources section to review existing publications, slide sets, or Web resources that use CIBMTR data. You may also want to review the types of data available for research or request.

Request information based on the type of information you need:

Data submitted by your center image

CIBMTR member centers can access data they have submitted to CIBMTR through the Data Back to Center application, available via the CIBMTR Portal.

Proposals for a research study image

Investigators interested in observational research studies via the Working Committee structure can propose a study or participate in one of many existing studies.
Investigators interested in Health Services Research requiring data not available in CIBMTR's registry can propose a study or request support for health economic (cost, utilization, or cost-effectiveness); survey; or qualitative (focus groups or interviews) research consultation.

Request for a one-time custom analysis image

Investigators, physicians, patients, and others interested in hematopoietic cell transplantation (HCT) and other cellular therapies can request information using the Custom Information Request Form. Information is limited to descriptive analyses and are provided within two business days to three weeks, depending upon complexity. Information related to patient care and clinical decision-making is free of charge and receives the highest priority. Submit a Publication Permission Request Form if the intent is to include information as part of a publication.
Investigators, physicians, and others interested in the De-Identified Cord Blood Research Dataset can request this dataset using the proposal application here. This dataset is limited to a fixed set of variables as defined in the data dictionary linked here. After the application is submitted, CIBMTR Leadership will review the proposal. If approved, a Data Use Agreement will need to be signed in order to release the dataset. All proposed projects using this resource will be shared with the Cord Blood Advisory Group (CBAG). At the 6 month & 1 year timepoint, CIBMTR will follow up to learn of the study progress and outcomes. For any questions, please contact Jenna Kohn (jenna.kohn@nmdp.org).

Patients: Contact your healthcare provider immediately for reports of problems with your treatment or problems with products received for your treatment. CIBMTR uses de-identified data and is unable to associate reported treatment problems, adverse events, or corrections of information with a center, clinical trial, or healthcare provider.

Submit a Publication Permission Request Form if the intent is to include information as part of a publication.

Questions

Email CIBMTR